Miscellaneous Resources

CareCalendar – CareCalendar is a web based system to organize meals and other help for families during a time of illness or life changing event, such as the birth of a baby or death of a family member. CareCalendar can also be used for long term situations, including homebound and caregiver respite care needs.


Child Development & Behavior Topics – from YourChild: University of Michigan Health System – Information and resources on a number of topics of interest for parents, listed alphabetically.


DSCC Administrative Staff DirectoryUIC Division of Specialized Care for Children staff directory.


DSCC Staff Roster – UIC Division of Specialized Care for Children staff roster.


Durable Medical Equipment Information from Illinois DHS – Information from Illinois Department of Human Services on Durable Medical Equipment.


Federal Poverty Level Calculator – A calculator for determining Federal Poverty Level for eligibility guidelines from the National Center for Children in Poverty


Find A Health Center – Federally-funded health centers care for you, even if you have no health insurance. You pay what you can afford, based on your income. Health centers are in most cities and many rural areas. Type in your address and click the ‘Find Health Centers’ button to find health centers near you.


Guide to Managing Constipation in Children with Autism – From The Autism InerventionResearch Network on Physical Health (AIR-P)


Home Remodeling for People with Disabilities – What You Need to Know
For many people, owning and maintaining a home is one of the most significant investments they ever make. But for individuals and veterans living with disabilities, or seniors aging in place, the fact that much of the world outside is not built to accommodate their needs magnifies the value of a comfortable home. It’s vital they and their loved ones have access to the best resources about how to make their homes livable and enjoyable.


How Private Health Coverage Works – This primer provides basic overview o f private e coverage for healthcare. It begins by describing what we mean by private health coverage, and continues with discussions of the types of organizations that provide it, its key attributes, and how it is regulated. The paper addresses private health coverage purchased by individuals and employers; it does not address public benefit programs such as Medicare and Medicaid.


Illinois Life Span Program – The Illinois Lifespan Project is a statewide information resource for advocacy, services, and supports for people with disabilities.


Individuals with Disabilities Education Act (IDEA) for Children with Special Educational Needs from the American Academy of Pediatrics –  The American Academy of Pediatrics recently published this report including resources to help pediatric health care providers, in partnership with families, ensure that every child in need receives the EI and special education services to which he or she is entitled.


InfoAble Portal – The InfoAble Portal, developed by Steve Wilson and Roz Anderson, was designed to improve access to disability and health information for Family Connection of SC. The InfoAble Portal combines information from MedlinePlus, Clinical Trials.gov, PubMed, and the Center for Disability Resources (CDR) Library. There are also virtual tours of the CDR collection. In the tour, you can click on certain books and videos that have hotlinks to the online catalog. The Disability Dashboard topics were based on support groups at Family Connection.


KASA – Kids As Self Advocates – Kids As Self Advocates (KASA) is a national, grassroots project created by youth with disabilities for youth. We are teens and young adults with disabilities speaking out. KASA knows youth can make choices and advocate for themselves if they have the information and support they need.


Kids In Danger – A nonprofit organization dedicated to protecting children by improving children’s product safety.


NeedyMeds Camp and Scholarship Database – This is a listing of camps for children and adults with specific diseases, and for children who have a parent or a family member with a specific disease. These are not necessarily free camps, or camps for financially needy children and families. But, some of these camps offer financial aid, so contact the individual camp for details. If you’re looking for programs that provide general financial aid for camping or other activities, then go to the Disease Based Assistance area of NeedyMeds and search by the specific disease. The programs listed in this database include camps for children with one specific disease, whole types of diseases (such as all types of cancers) or broader chronic diseases. Many of these camps are funded by either private or government organizations. Some camps take children from anywhere in the U.S., while others are limited to people in specific states. Most have some type of eligibility requirements, usually financial ones.


Self-Advocacy Online – The Research and Training Center on Community Living (RTC) at The University of Minnesota and The Arc have partnered to support an innovative website specifically for people with intellectual and developmental disabilities (I/DD) to help them advocate for themselves and take charge of their lives. Self-Advocacy Online  is a content rich, accessible online educational and networking tool developed by the RTC and promoted by The Arc.


Students Living with a Genetic Condition: A Guide for Parents – Developed by NICHCY, this guide provides information that may be helpful when writing a letter or when preparing to meet with your student’s teacher, school nurse, and physical education teacher or coach. This may also be a useful resource for bus drivers, babysitters, church leaders, or any other potential caregiver.


Through the Looking Glass – Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. Our mission is “To create, demonstrate and encourage non-pathological and empowering resources and model early intervention services for families with disability issues in parent or child which integrate expertise derived from personal disability experience and disability culture.”


United Healthcare Children’s Foundation Offers Medical Assistance Grants – The UnitedHealthcare Children’s Foundation is offering support to meet the needs of children across the United States with assistance grants for medical services not fully covered by health insurance.


University of Illinois Extension Programs – University of Illinois Extension is the flagship outreach effort of the University of Illinois at Urbana-Champaign, offering educational programs to residents of all of Illinois’ 102 counties – and far beyond. Through learning partnerships that put knowledge to work, U of I Extension’s programs are aimed at making life better, healthier, safer and more profitable for individuals and their communities. U of I Extension offers educational programs in five broad areas: •Healthy society •Food security and safety •Environmental stewardship •Sustainable and profitable food production and marketing systems •Enhancing youth, family and community well-being