Health Information Center

Youth Transition Resources

Autism Speaks Family Services Transition Tool Kit – The Autism Speaks Transition Tool Kit was created to serve as a guide to assist families on the journey from adolescence to adulthood.

Being a Healthy Adult: How to Advocate for Your Health – The Elizabeth M. Boggs Center on Developmental Disabilities – The purpose of this guide is to teach young adults with disabilities how to become strong self-advocates for their own health and health care. Available in pdf and mp3 audio file formats. Also available in Spanish.

CountyCare FAQ – The State of Illinois and Cook County Health & Hospitals System will be operating a new Medicaid program for uninsured adults in Cook County called CountyCare.   This is a Medicaid program through the Affordable Care Act (Healthcare Reform).

Disability Friendly Colleges – A Guide for Students with Physical Disabilities – Did you know that of some 2,500 four-year colleges in the US today, only five provide academic and personal services comprehensive enough for a student with serious physical disabilities to live on campus? Students with physical disabilities have to work out practical, personal details that other students do not, even if their top criteria in choosing a college are ordinary things like course offerings, college rank and geographic location.

Family Information Guide to Assistive Technology and Transition – From The Family Center on Technology and Disability (FCTD). The FCTD produces and distributes a range of informational resources on the subject of assistive and instructional technologies. The Center’s goal is to strengthen the ability of organizations throughout the country to provide current, accurate, and useful technology-related services, resources, and materials to the families of children with disabilities.

FYI Transition – University of South Florida and the Florida Developmental Disabilities Council – A website on transition in Florida with sections for students, families, and professionals. Video/audio training modules on Health and Transition, Money and Budgeting, and other important transition topics.

Got Transition? National Health Care Transition Center Website – Got Transition is the National Health Care Transition Center that aims to support optimal transitions from pediatric to adult models of health care for youth with and without special health care needs.

Health and the IEP – Resources from the Waisman Resource Center – Success in the classroom, in the community, and on the job requires that young people are healthy. It is therefore imperative that young people with health issues have the knowledge and skills needed to maintain and sustain their health and wellness. To ensure this, health related goals need to be included in the Individualized Education Plan (IEP).

Healthy and Ready to Work National Resource Center – Health Impacts All Aspects of Life Success in the classroom, within the community, and on the job requires that young people with special health care needs stay healthy. To stay healthy, young people need an understanding of their health and to participate in their health care decisions. We provide information and connections to health and transition expertise nationwide – from those in the know, doing the work and living it!

Illinois workNet Center – Youth in Transition – Information for youth in transiton from the Illinois Department of Commerce and Economic Opportunity.

Integrated Employment Toolkit – A resource developed by the Office of Disability and Employment Policy (ODEP).

Making the Move to Managing Your Own Personal Assistance Services (PAS): A Toolkit for Youth with Disabilities Transitioning to Adulthood – From the National Collaborative on Workforce and Disability. This new guide assists youth in strengthening some of the most fundamental skills essential for successfully managing their own PAS: effective communication, time-management, working with others, and establishing professional relationships.

Office of State Guardian – Guide to Adult Guardianship in Illinois – This guide, available is English and Spanish, answers questions commonly asked about Illinois guardianship for persons with disabilities. If you require more detailed information, please refer to the Probate Act of Illinois or consult an attorney.

Parent Brief: What Does Health Have To Do With Transition? Everything! – From NCSET and Pacer Center. This Parent Brief provides information on the benefits of and strategies for including health in the Individualized Education Program (IEP) process.

Ready? Get Set. Go! – Guide to Becoming Independent, NH Family Voices – Ready? Get Set. Go! is a publication designed and adapted by the New Hampshire Family Voice youth advisory council, YEAH (Youth Educating Adults on Healthcare). The booklet, includes self-assessment worksheets for youth and contains materials adapted from a number of credited sources that the YEAH Advisory Council wanted to share with other youth with chronic health conditions.

Think College Illinois – This website introduces inclusive postsecondary education (PSE) for students with intellectual and developmental disabilities (I/DD) in Illinois. You will find this website helpful if you are a representative from a postsecondary education institution and/or a student, self-advocate, parent, administrator, service provider, or policy-maker.

Transition – Life After High School for Youth Who Are Deaf-Blind – From the National Consortium on Deaf-Blindness. A new 4-page publication called describing the importance of in-depth transition planning to meet the unique needs of children and youth who are deaf-blind and the requirements of the Individuals with Disabilities Education Act as measured by Indicator 13.

Transition Health Care Checklist: Preparing for Life as an Adult – A resource to help youth and young adults with special health care needs and disabilities make a successful transition to adult living that includes their education, health and community living. From the Waisman Resource Center, University of Wisconsin at Madison, University Center for Excellence in Developmental Disabilities.

Transition Resources from DSCC – Planning for the transition from pediatric doctors to adult doctors, moving from school to work, and achieving the highest level of independent living can be exciting and challenging. It is never too early to begin thinking about and preparing for your child’s future. The materials listed here can help guide you and your child as you experience life’s transitions.

We Connect Now – Uniting College Students with Disabilities in Access to Higher Education and Employment Issues – We Connect Now is dedicated to uniting people interested in rights and issues affecting people with disabilities, with particular emphasis on college students and access to higher education and employment issues. One of the goals of this site is to help college students with disabilities to succeed in their studies by getting the information and support they need, both through resources, links, blogs latest news, studying existing laws and regulation and through personal contacts.

When I’m 3, Where Will I Be? A Family’s Transition Workbook from Illinois State Board of Education – When I’m 3, Where Will I Be? From the Illinois State Board of Education. English version